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Episode #0058 Scott Johnson Competes in Hawaii Ironman for Team Boomer
26/09/2007
Scott Johnson is 35 years old with cystic fibrosis and LIVING, BREATHING, SUCCEEDING as he celebrated 6 years post double lung transplant on September 15th. âDreams do come true,â states Scott, as he gets ready for the Hawaiian Ironman Championships on October 13th 2007 in Kona, Hawaii. This is the most prestigious race in triathlon and the pinnacle of most peopleâs career. The Hawaii Ironman is the equivalent of the Tour de France, the Super Bowl, the World Series, and Wimbledon. Scott, competing for Team Boomer, has accepted this challenge to try and inspire people with CF to make exercise a part of their normal routine.
Scott grew up in Jacksonville, North Carolina and was diagnosed with CF at 2 months. Scott received a double lung transplant on September 15th 2001. âExercise and a Positive Attitudeâ helped Scott make it through the surgery. Scott states: âMy quality of life with my new lungs is better than living with CFâ. On Motherâs Day in May 2003, Scott crossed the finish line of his first triathlonâ a gift for himself and his mother Marilyn. Scott has competed in over 25 triathlons of various distances and is now ready for the most elite triathlon, the Hawaii Ironman (swim 2.4 miles, bike 112 miles, and run 26.2 miles) Scottâs family and fiancÃ, Leanne, will be cheering him on in Hawaii and Scott will be getting married 3 days after the Ironman competition. Prior to each race Scott writes his transplant date on his forearm to remind himself of where he came from and his ânew beginningâ. By competing for Team Boomer, Scott is helping to raise money for the Exercise for Life scholarship for people with CF. Join Scott and the cause: www.firstgiving.com/cfironman Check out Scottâs photoâs and video at: www.myspace.com/slowesttriathlete âDo Not Be Afraid of Deathâ Be Afraid of the Half Lived Lifeâ Scottâs words of encouragement for others with CF or facing a transplant: âMaintain a positive outlook, donât give up, and keep exercising â miracles do happenââEpisode #0057 Abby Tranel Wins 2007 Exercise for Life Scholarship
30/08/2007
Title: Abby Tranel Wins 2007 Exercise for Life Scholarship Abby Tranel from Hampton, Nebraska wins $10,000 scholar-athlete award for people with CF. Abby ran the 1.5 mile run in 10 minutes 19 seconds at Nebraska Wesleyan Universityâs track in Lincoln, Nebraska. Abby is a graduate of Hampton High School in Hampton, NE and graduated with a 3.5 G.P.A. and will be attending Nebraska Wesleyan University in the fall.
Abby has always been involved in sports including volleyball, basketball, and track. School activities include the Student Council, Cheerleading, Speech, Drama, and President of the National Honor Society. Abby was diagnosed with CF at birth and also has an older sister with cystic fibrosis that competed nationally in track & field for University of Nebraska. âExercise and therapies for CF have very much become an integral part of my life and daily routine.â states Abby. âAfter a few months of steady running, my lung function tests improved dramatically. It was not just the test results that kept me going with runningâ I just simply felt better, and most importantly felt that I was now in control of my CF, it was no longer controlling me!â Abby states confidently. Abby lives a normal life and does not make a big deal about CF. âMy mom has taught me and my sister to be very independent at an early age and I thank her for thatââ Regarding collegeâ âI look forward to meeting new people and am beginning to realize all the opportunities that college and our world has to offer.â Besides being compliant to her medication and therapy, Abby has learned the value of exercise, keeping a routine, and following through for positive results. âI have realized that if you want to be big you have to dream bigâ and that is just what I am doing despite having CF!â states Abby.Episode #0056 Patrick Robinson wins 2007 Exercise for Life Scholarship
24/08/2007
Title: Patrick Robinson wins 2007 Exercise for Life Scholarship Patrick Robinson from Sandown, NH wins $10,000 scholar-athlete award for people with CF. Mr. Robinson ran the 1.5 mile run in 10 minutes 10 seconds at his former high school Timberlane Regional H.S. in Plaistow, NH as his mom, dad, and younger brothers Andrew and Christopher cheered him on. Patrick recently graduated with a 3.9 G.P.A. and will be attending Boston University in the fall.
Patrick is very involved in sports including skiing, hiking (Patrick is an Eagle Scout), track, and Ultimate Frisbee and attributes exercise to playing a major part in keeping his lungs clear. âPlaying the trumpet in marching band also was a great form of airway clearanceâ states Patrick. Patrick was diagnosed with CF at 3 months of age. Great Strides Walk-a-Thon team âPatrickâs Patrollersâ walks every year to raise money for CFF and a cure. Regarding collegeâ âI look forward to meeting new people and being more independentâ. Besides being compliant to his medication and therapy, Patrick goes above and beyond this daily ritual by running 2 miles everyday. âI believe in embracing the disease and not running from itâ states Patrick.Episode #0055 Kristin McFall, Time Management and Staying Compliant in Adulthood
24/07/2007
Title: Kristin McFall, Time Management and Staying Compliant in Adulthood
With the help of todayâs therapies, cystic fibrosis (CF) patients are now living
longer and achieving more than ever before. Pulmonary treatments are enabling
adults with CF to pursue their dreams by entering college and the career world.
âKristin McFall, Time Management and Staying Compliant in Adulthood,â features
Kristin McFall, a 36-year-old career woman with CF. Kristin talks about
succeeding in life, her career, traveling, and winning the battle with CF on a
daily basis through therapy compliance. Kristin believes in the importance of
âunderstanding your disease and partnering up with your health care team.â The
podcast is now available for downloading on www.jerrycahill.com beginning on May
4th, 2007.
Kristin discusses the importance of being compliant and proactive as an adult
with CF while maintaining a career and busy social life.
Highlights from the Podcast include:
Episode #0054 The Big Fun Box
03/07/2007
âMaking Fun Contagiousââ Jo Anne McKinney and Grant Prather make BIG FUN for many pediatric patients with the BIG FUN BOX. The mission statement: To share with pediatric patients and their familiesâ ways to use their imagination to give them comfort and fun in the midst of stressful situations. The BIG FUN BOX is filled with a stress toy, folding ruler, colored pencils, pencil sharpener, jigsaw puzzle, HeadGames, Findâems, imagination pad, thank you notes, plastic stencil, and playing cards.
âThe BIG FUN BOX is filled with imagination and you can let it take you wherever you want to goââ states Jo Anne Jo Anne has spent many hours in the hospital with her son Grant, due to his cystic fibrosis, and they learned to âmake their own funâ The BIG FUN BOX is an activity box for children in the hospital with chronic illnesses (ages 7 to 12) The BIG FUN BOX was launched in October 2006 and has delivered over 3,100 boxes in 9 states to 31 hospitals. âOur goal is to raise $2.0 million and deliver 100,000 BIG FUN BOXESâ states Jo Anne. âThe BFB is a great vehicle to rescue patients after being in the hospital for 5-6 days and you just find out you will be in longerâ The BIG FUN BOX seeks corporate sponsors to bring BIG FUN to children with chronic diseases. Jo Anne needs to raise $27,000 before 1,000 boxes can go into production. The BIG FUN BOX is a 501 c (3) non-profit organization. For more info: www.thebigfunbox.org or call: 904-730-0956